The changing thoughts of a steroid dependent person

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A nice pretty photo to brighten your day – Denmark, WA

(Photography Sam Rose)

It’s been ages since I last blogged for a variety of reasons.  I have been working on my book which will be out for publication next month.

Plus I have been feeling utter rubbish with my health and adrenal insufficiency. Honestly, if I thought having Sjogrens was hard then I was sadly mistaken because having your adrenal glands behave so badly is ten times worse.

It was pretty much decided last year that my adrenal insufficiency was for life and not just for Christmas and after a couple of years of trying to wean off by just 0.5mg of preds every 3 months and feeling like I was going to die – twice, that it was time to call it quits.

Anyway, that is where I am at the moment, living with this horrible imposter that makes me feel rubbish for most of my day and live for my next dose of steroids.  There has to be a better way, another way or surely this is all a big fat mistake – right? Who knows, not me that’s for sure. But here is my daily diary of the thoughts that frequent my head every day without fail.

My 5mgs of preds used to last all day, but now they don’t – I have to split them up and despite what you might have read or heard, some of us absorb drugs quicker than others or just have absorption problems.

5am – Briefly aware of my hands and feet having an altered sensation, the small bones in my hands and feet hurt, the tops of my thighs hurt.  Am I awake? No I am not, I am trying to hang on to the nice dream that my adrenal symptoms are dragging me away from. I refuse to wake because life doesn’t hurt so much when you are asleep. Yes it would be prudent to wake and take my steroids but no, I won’t – let me sleep please and take your dizziness and nausea with you.

7am – I am awake, the alarm has told me it is time to get up, except that I can’t. I feel really dizzy and want to vomit and the tops of my thighs hurt with a period pain type pain. Sometimes the pain is in my lower back as well and it is sharp, but not always.

I sit up and take my 2mgs of preds and then lie back down until 7.30am, not because the steroids have worked because they haven’t by then as they take at least an hour, but because I simply cannot get up. I lie in bed and wait until I feel a bit better.

I briefly flirt with the idea of going to the gym but my leg muscles feel too weak and as I can only just get in and out of the car early in the morning, I think the leg press is out of action, don’t you?

7.30am – I am up, go me! Top Queen for getting out of bed like a champion when I feel so shit, I deserve a medal.

9am – I feel human – almost and enjoy my breakfast, actually I feel pretty good and ‘normal’ whatever that is. I have a confident walk, I can have a laugh and everything is just perfect – until someone decides to put something in the microwave that smells too strong and then my stomach wants to punish me and make me vomit.

But that is OK, I still feel normal like everyone else – except for the cooking smells, but I can ignore them.

10am – This is good, perhaps I don’t need these steroids – think I can ask the doctor to wean me off them. I hate steroids, I hate them more than Celine Dion, I hate them more than celery – I just hate them. Yes that is what I will do, I will ask my doctor to wean me off, I don’t need them and if I am strong then I can get off them – easy!

10.30am – I have been super busy, my face feels like it is being squished in a vice, my head is hurting and I have brain fog. I feel sick and if anyone puts curry in that microwave then I will cry or vomit or even both – a bit like the Exorcist.

And while you are at it, you can turn those lights out and stop talking and laughing because quite frankly it is too noisy and too bright. My muscles are starting to ache and it hurts to get off the chair. But I reckon I can still ask my doctor to wean me off the preds, even though I know I have tried before, this time it will be different.

I feel sick, who in the name of fluffy kittens is heating food up – any food, stop it and stop it right now! Does anyone have any salt or pickles? I will sell my soul for salty goodness, come on, someone must have salty goodness and no, I do not care about my blood pressure.

11am – It’s steroid time! Give me my 1mg of preds and give it to me right now. Come to Samantha you beautiful pretty little white tablet, I love you so much, how could I have ever thought of talking about you so badly and asking my doctor to wean me off you. Do you forgive me Mr Prednisone? Get.In.My.Belly!

12noon – Come on preds, do your magic and I will love you forever.

1pm – What a beautiful day, let’s go for a walk – my goodness I can march like a champ, check me out, I am normal! Who needs the preds, surely not me because I feel normal! Go me, check me out walking like a healthy thing looking all normal and showing off. Adrenal glands, you don’t rule me, I rule you so take that  and stuff it with garlic.

2.30pm – I am dying, no really I am. I am going to sleep so don’t try to stop me. Stop squishing my facial muscles, it is not funny. Shut up everyone, just shut up – don’t eat smelly food, stop teasing me with your salt and just stop everything. Did I say that I wanted to wean off the preds? Really? Are you sure? You are such a liar.

3pm – Hello Mr Prednisone, get in my belly and do your magic, how has your day been? No, I never said wean off, we are mates aren’t we?

3.30pm – Please work quickly, I am nodding off and dribbling down my own cheeks and I feel sick.

5pm – Feeling good sister! I think I can conquer the world, I am wide awake – this is brilliant. Check me out walking up and down those stairs, even when I don’t need to – purely to prove that I can. Actually, Preds – I don’t need you, I am going to ask my doctor to wean me off you because I don’t do dependency my friend so please go and find someone else to invade.

I am going to walk my dogs, work on my book, hug my husband, have a shower, make some tea and feel thankful for my health.

6pm – Don’t mind me, I am just going to fall in the bath, we can walk the dogs and watch a DVD later – I am going to ask the doctor to wean me off the preds. My husband who has been patiently waiting at home for me, nods knowingly – knowing that none of it will happen.

After a soak in the bath, I sit on the edge of the bath because my muscles are refusing to let me stand up. Perhaps I will work on the book tomorrow and just watch a DVD with my husband.

7pm – What a brilliant DVD, I can’t stop yawning this compulsive desire to yawn is taking over. Sorry I haven’t seen you today, haven’t seen the dogs – you are all so lovely and I love you so much, maybe tomorrow?

11pm – Has the DVD finished? How can that be, I only stopped for a snooze. My dogs look at me accusingly and Gordon the cat looks mortally wounded while my husband has resigned himself to that is just how it is. As for me, I feel crap and all I can think about is yes, you have guessed it – steroids.

Accusing looks from my pets

(Photography by Sam Rose)

I take my last 1mg of preds and go to bed. I promise myself that when I see my doctor, I will ask to wean off. Steroid dependency is something that happens to someone else and I am too strong to let it happen to me.

Until I realise that it HAS happened to me and how strong I must be for living this crap day in and day out. In fact, I am going to award myself the title of ‘Champion’ just to make me feel better.

Steroids – our only defense against adrenal insufficiency and the drug we love to hate, The real strength comes from acceptance and learning to cope with the condition which is something that I am still coming to grips with.

I am getting there though, slowly but surely.

Talking of which, I have 90 minutes until my last dose, but whose counting……

Samantha Rose (C) Copyright August 2017

 

 

For the Love of Books…

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My Peter Kay book – goes down well with a cup of tea

(Photograph by Sam Rose)

Every so often I come across someone that for whatever reason, makes a part of my day worthwhile and today was one of those days.

My husband was off today so we had been making the most of our day off and went shopping.  I had been planning on getting buying a Kindle for quite some time and today we went in to one shop to have a look as I had seen them advertised there for $110.

As we went to the section where the Kindles were, a young guy asked if he could help us, he looked a bit geeky and had a huge friendly grin and gave us a warm welcome.

‘Can you help me with buying a Kindle please?’ I smiled at him, it was hard not to you see – smile at him, he just radiated something that I could not quite put my finger on.

‘I love actual books personally and have a huge collection’ He said in a fretful voice to nobody in particular – almost as though each Kindle he sold would destroy the lives of the precious paperbacks (who knows, that might happen).

I laughed and agreed that there is nothing like holding a book in your hands, the touch and the smell and losing yourself in the work that someone else has poured their heart, life, soul and imagination in to.

‘You like books too?’ He gasped as though he had come across the key to the ‘secret club’ and then checking to see that no-one was watching, he pulled his phone from his pocket and showed me a picture of his home ‘library’ which I will have to admit, was bloody impressive.

We both stood there and admired the pictures of books neatly organised in Author order, standing to attention waiting for someone to grab them off the shelf and enter their secret world.

‘My God that is awesome, you have heaps of them’ I gasped enviably and felt quite embarrassed at my somewhat poor in comparison pile of books on my bookshelf.

‘And that is just on my book case, you haven’t seen what is on my floor’ He nodded proudly causing my husband to laugh. It was like I had unlocked the key to something but I don’t quite know what, because this guy suddenly became animated and had stepped out of his sales assistant role.

I told him how cheap it is to order second hand books from Amazon UK and even with shipping, still beats the books in the charity shops and how I am currently reading a book on criminal psychology.

‘Oh my God I LOVE stuff like that’ he said looking like he was going to burst and then went on to tell me he loves to imagine what life would be like living centuries ago as in some of the books he has read.

‘I have a book about Jack the Ripper – I haven’t read it yet though.  I would have loved to have taken a peak into those times’ I told him, he nodded happily in agreement.

I explained to him that Facebook has destroyed my ability to focus and read a book and how I was trying to cut down on how much time I spend on social media.

‘I don’t have Facebook or social media’ He said firmly.  I will admit to staring at him as though he had two heads – or even three, I mean NO social media????

He went on to say that for every hour he could spend on Facebook he could be learning something constructive, like last week he learned to make excellent coffee and next week he would learn something else so why waste all that time on Facebook when he could be doing things to better himself? He had a good point, a very good point.

I mentioned that I am writing a book and was on the second draft, I didn’t dare tell him what it was about though – that would just be embarrassing, I mean how can you describe a world of talking dogs that have adult social lives and drink dog beer?  That takes a special person to understand that not to mention a certain sense of humour to ‘get it’.

Meanwhile customers were asking us if we could move as we were blocking their way and I still didn’t have my Kindle – but that didn’t matter because this guy was far more interesting than any Kindle I could have bought or any book I could have read.

‘I wish that I could find a book club local to me’ I said wistfully.  I secretly wondered if he was in a book club of some sort, but saying; that he had so many books that he could probably run his own book club and I most certainly would have liked to become a member of it as well.

Never have I seen someone so young have such a passion for books and reading.  All I will say is that wherever that guy will end up working, I hope it is doing something that makes his face light up like it did today.

After searching in various places, he told us that the Kindle we wanted was sold out and then offered to knock some money off the next (more expensive) model (with a back light which I don’t need – or perhaps I do as my eyesight is crap).

I didn’t take him up on the offer but we thanked him for his help and went somewhere else where it was on sale for $90 and I managed to get a protective case for $24 which was a bargain and you can’t beat a good bargain.

My books are now all downloaded on to my Kindle which is in its new case and is charging in the bedroom and is almost good to go. It takes a bit of getting used to not having a back light but as each time I read a book on my phone I end up on Facebook or chatting on my phone which I am trying to cut down on, that can only be a good thing.

But how glad I was to have met someone like him, a young guy (student?) and obviously very creative. To witness someone become so passionate and animated about something was love was comparable to taking a brief step into their world.

When my book is published I shall go back to the store and drop him off a copy, he may read it, he may not but just to have a place on that book shelf of his would be quite a privilege.

As for my Kindle, well it is nice and all that and modern technology has allowed me to store hundreds of books on to one device which I can carry with me without the weight of actual books.

But if I am honest, if I am really honest, there is nothing like the beautifully designed cover of an actual book, with the promise of a whole new world inside it where the characters are waiting to show you what is happening once you turn that first page.

I love books, the smell of them, the feel of them and especially how something so small can be so powerful to the imagination.

Whether or not Kindle will eventually replace actual books remains to be seen but as long as there are people like the sales assistant I met today, there will always be a secret library somewhere in the world.

Samantha Rose (C) Copyright May 2017

Quite Simply – Menopause

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Just because the sun sets on one stage in our lives, it will always rise in another

(Photograph by Sam Rose)

There, I have said it – the very word that many women deny all involvement with or are embarrassed to even say, preferring the words ‘I am at that time of life’ or ‘a lady of a certain age’ but very few will say ‘Hey sweetie, I am in the menopause – let’s have an ovary party and celebrate the retirement of my reproductive organs’

I wonder if there is there an element of embarrassment associated with this time of a woman’s life?  Has society got some unwritten rule that it should not be discussed and to do so is like admitting that you are on the slippery slope down to old age, incontinence, big knickers and genitals like Wallace and Gromit’s mouth (letter box).

I recall once having a discussion about menopause (you know, just women’s talk) with a lady who I shall refer to as ‘Ethel’ in her mid 50s and she said to me in a guarded voice ‘Oh no, I am not there yet, nowhere near it in fact – years away’, then she nodded several times for good measure and self reassurance.

It was said with such ferocity and passion that I could imagine her as an 80 year old lady in a nursing home claiming that her ovaries still have the fertility capability of a nubile 20 year old while saying ‘Still a long way off yet, no menopause for me yet dear’.

Or perhaps when she has passed on, it will be on her grave stone ‘Ethel, died aged 100 years old but by God her ovaries went to the grave good as new’

Tales of Horror…

I am not going to lie though, the stories that I have heard about menopause have been pretty scary.  Things like light bladder weakness (LBL) and peeing yourself if you cough, laugh or don’t get to a toilet straight away are somewhat alarming.

Have you seen adverts showing pads for LBL that omit a pleasant perfumed odour if you ‘leak’, well who in the name of God invented those?  Imagine people get to recognise the perfume that is secreted on these pads and the minute they smell it, they point at you and yell ‘Oh my god, she has pissed herself!’  You may as well put a high viz vest on saying ‘LBL’.

Claims that pelvic floor exercises are next to Godliness obviously have some truth in it and up until now I have never paid much attention to it and why would I?  Clenching myself for counts of ten at bus stops have never been on my agenda, mind you I never get the bus so I suppose I could do it in Coles supermarket with the end result being a pelvic floor you could crack coconuts with.  Now that is something to aim for (cracking coconuts I mean and not urinating yourself).

Hot flushes, mood swings, weight gain – come on ladies, we know the score and have read all about the symptoms.  We have all heard about the Pandoras box of hormones that Mother Nature chucks at us when our time of life is nearing so let’s talk about it and those that don’t like it can turn around and put their fingers in their ears the way they do when Trump gives a speech or poverty adverts come on TV.

The Puzzle that is my Body

If you have read my previous blogs you will know that I have an auto immune disease and adrenal insufficiency.  My fight or flight hormones are not as they should be and sometimes I think that my hormones are having a party and I am not invited but that’s adrenals for you, they are a bit naughty like that.

Anyway, the other month I had my hormones checked for menopause because at 49 years old, surely it has to be on the way, I mean really it must.  My last test was negative and I was in the ‘Who me? I am nowhere near it, years away club’ because at that time I wasn’t anywhere near it and I wasn’t in that famous Egyptian river of ‘denial’ either – I still had the hormones of a non menopausal woman.

But this time I went to get my results from my doctor and I sat patiently waiting for her to read them to me.

She frowned at the results and said ‘You are in Peri-menopause, have you noticed any symptoms?’

Feeling a mixture of shock and ‘where the fuck has my youth gone?’ plus a good measure of happiness and ‘Yee ha, does this mean I am a grown up?’, I told her that no, I hadn’t had any symptoms and I certainly wasn’t peeing myself when I coughed/sneezed or sweating like joint of gammon in a butchers window.

‘Well you are there, your results show you are definitely in it (Peri-menopause)’. She confirmed and then as quickly as you like, she changed the subject on to something else leaving me wondering where my certificate of congratulations was.

Congratulations – I think….

After my consultation, I decided that after that news I should celebrate with a bacon roll and a lovely healthy can of coke plus a bag of chocolate covered peanuts (yes I know, crap food and all that stuff – not one gram of toss was given that day about that).

Nothing can prepare you for how you might feel for being told you are starting menopause.  It’s a normal healthy part of being a woman – even if the symptoms can be awful.  Suddenly you have left the ‘No not me, I’ve got years ahead of me yet’ club, and you have entered the ‘Shit, it’s actually happening’ club.

Whilst munching on my bacon roll, I digested the news and wondered how in the name of fluffy kittens did I not know such a significant process was taking place in my body? I mean really, how. did. I. not. know?

I had plans in my mind that when it happened, I would be greeted with some hot flushes and night sweats that would take the top off my head and blow steam out of my ears and nose while my face went bright red and hot enough to fry an egg on.

I had plans that I would be on the phone to my sister discussing my hot flushes and minge problems in true girly fashion and had I been living in the UK, we could have done that over a glass of wine or three and chocolate coated peanuts.  There are baby showers, hens parties so why not menopause parties, we could have a cake in the shape of a lady-garden and everyone could bless it or something.

And really, why should it not be celebrated when we have gone through so much to get that title of ‘Peri-menopausal’?

Because I actually believe that it should come with a ‘certificate of achievement’ and a trophy to make up for the years of periods, period pain, PMS, plus the vast amount of money spent on sanitary protection and painkillers, not to mention the hassles of birth control and a week of hating anything with penis.

I had plans that I would have sensible and respectable chats with other women at the same stage of life as myself, we could discuss and compare symptoms over a Chai Latte and a custard cream biscuit.  But most of all I had plans that I would know that it was happening, like a gentle tap on the shoulder and the ‘Menopause Fairy’ saying ‘Samantha, it is time – welcome to Peri-Menopause, take my hand and I shall show you the way’.

But no, not even a ‘Catch ya later flappy vag, Estrogen is now leaving the building! Hope you enjoyed the ovarian cyst we gave you last year bitch, enjoy the hot flushes when they arrive and god bless your lady garden because it’s sure gonna need it!’  Nothing, not a thing, no warning – I mean how disrespectful!

It was like some secret hormonal party was taking place in my body and until the doctor told me, I had not been privy to any part of it.  Any hopes that I had of that magical moment of realising something different was happening to me, had been cruelly dashed because I genuinely did not have a clue.

In fact I reckon my ovaries have blindfolded me in the night, kidnapped me and let me out in planet menopause wondering where the hell I am and how did I get there – like Back to the Future with Marty McFly but no chance of turning the clock back.

It was with some elation that I drove back to work that morning, once it had sunk in that is.  Because my body cannot do anything normally, I can’t get coughs or colds because of my overactive immune system.  Even my periods have never really been normal and only lasted 3 or 4 days if that and sometimes they never rocked up at all but then again, adrenal insufficiency can play a nice game of ‘hide and seek’ with your menstrual cycle so I have discovered.

So this news was actually very good to hear because for the first time in a long time, I was normal and that actually feels quite good.

On the way back to the office I sat waiting at the traffic lights in my car, blasting out ‘Rebel Yell’ and feeling very ‘rock chick’. I scoffed the rest of those damned chocolate peanuts like a starving person and rebelliously took swigs of coke from the bottle while waiting for the green light.  It was at that moment that I decided that I was more than entitled to my very own mid life crisis, but what form that will take remains to be seen as I am still planning that one.

At home

‘How did your appointment go?’ My husband asked me when I got home from work.

‘Great, I have started menopause!’ I beamed at him and then quite suddenly felt like a grown up for saying it out loud – did this mean I had to start acting like one?

‘Since when?’ husband asked looking surprised.

‘Doctor said judging by my hormone results it must have been a while, so I don’t know’ I shrugged my shoulders and poured myself a glass of wine.

‘How come you didn’t know? I thought all women knew this stuff?’ he asked.

‘I don’t know but I plan to call my sisters and discuss my hot flushes with them and talk about menopause symptoms’ I told him and then gulped my wine down rather too quickly because I was still thirsty from the bacon roll and the chocolate peanuts.

‘But you haven’t had any hot flushes or symptoms’ my husband started to say.

‘They are coming, I don’t know when but I have heard most women get them and I should think mine are on their way and then I will blow steam out of my ears and nose’ I said knowingly.  Like I would know, my hormones never tell me anything the bastards – but that is how I imagine it to be like and I am sure it will be.

Later that night

I stared at my reflection in the mirror from different angles wondering if I had changed, surely something like this happening means that you notice changes.  Shouldn’t the lady-garden suddenly look like a wizened prune or something, or grow a grey goatee beard just like Billy Connolly’s?

Or would it wear a pair of horn-rimmed old ladies spectacles and look at me with a newly acquired look of disapproval if I didn’t act my age.  But no, I still looked the same and there was no grey goatee panty beard, no horn rimmed glasses and no disapproving looks -nothing at all.

Conclusion

Well now I am officially in the Peri-menopause club, I shall at some point be discussing the hot flushes (when they start) with my sisters over the phone with a glass of wine and lets not forget those chocolate peanuts because I can wholly recommend stuffing a bag of those babies down in celebration when you get this kind of news.

How do I feel? I feel kind of mature, a bit like a grown up that has risen above any childish antics.  I have a kind of peaceful serenity about me to the point I may go and start listening to Cliff Richard and bake muffins (and if you believe that, you believe anything!)

Now if you will excuse me, I have to go and work on the book that I am writing about dogs that talk, do childish things and have social lives.

Peri-menopause – now wearing that badge and totally owning it.

Samantha Rose (C) Copyright October 2016

Useful Links

Menopause Support

Red Hot Mamas

Cliff Richard songs – in a crisis only Cliff will do

Chocolate covered peanuts – your life saver

God love Billy Connolly

 

 

Kicking the Butt of Cancer

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My Dad (right) – taken at his favorite Italian restaurant he visited when he came to Perth

(Photograph by Samantha Rose)

*This update is told with the permission and blessing from my Dad and this is his story as he told it to me.

It was written in January 2015 when Dad was given the ‘all-clear’ from his prostate cancer.  I have chosen to publish his story one year later in the hope that it might help other men in this situation*.

As you may or may not know, in 2014 my Dad was diagnosed with Prostate cancer and thanks to the vigilance of his doctor and Dad not being afraid to have the relevant tests – it was caught in good time.

But please don’t think that for a man having prostate cancer is any less traumatic than other cancers because the treatment for this disease is exceptionally hard and anyone that has had radiotherapy can testify as such, not to mention the medication you have to take and the havoc it can wreak on your body and emotional well-being.

Dad told me that it is about time that more stories like his were told to give hope to others that have been diagnosed with cancer and like he was, are feeling overwhelmed with their diagnosis and the prospect of what lies ahead of them. In particular – prostate cancer, which so many men are too embarrassed to discuss let alone get checked for.

Anyway Dad called me tonight to tell me about his hospital visit to the cancer specialist on Friday and how the news was broken to him about the results of his prostate cancer.

My sister Terri had gone along with him to his appointment and Dad said the Doctor read his blood results and had a big grin on his face and Dad wondered why he (the doctor) was smiling.

He didn’t have to wait long to find out, he advised my Dad that his prostate PSA levels were barely traceable and that he had never seen them so low and that Dad does not have to go back for a year.

Dad said that the Doctor looked so pleased with giving this news, you can imagine that doctors give bad news all the time so this must have made his day.

Both he and my sister hugged each other when they left – oblivious to those around them, simply unable to believe the news that they had just been told. They quickly then told my other sister Julie (you can call her Me Julie and she has a fetish for firemen).

They made their way to the pub where Dad’s friends were there and the news was told and Dad said that people were congratulating him, some of them he knew, some he didn’t.

Someone bought him a bottle of champagne to celebrate and glasses were filled to raise a toast. Because what could be more fitting to raising a toast than to kicking cancers butt?

As everyone raised their glass, Dad told me that he picked up his glass and said quite suddenly and loudly ‘Fuck Cancer’ and one by one everyone raised their glass and repeated it so you could hear ‘Fuck Cancer’ being repeated several times at the bar.

Dad said he couldn’t stop smiling and he admitted to me on the phone tonight that he was still smiling and not quite believing the news.

He also emphasized that the moral of this update is to show that sometimes, just sometimes you can beat something that initially overwhelms you.

Prostate cancer is treatable – but you have to catch it in time. So many men have symptoms that they ignore and a simple blood test and check up can detect things early enough so that treatment can be started. The trouble is guys, embarrassment can literally be your worst enemy.

I will say that Dad has been through a tough time with his treatment and I remember him saying that it was the thought of having cancer in his body that really upset him – just the mere thought of it being there.

He came through the radiotherapy which was not pleasant, he is still on the medication which is also not pleasant but said that he doesn’t care ‘providing the cancer has gone’ because he is at a stage now where he could not have imagined being at 12 months ago.

Cancer is a bastard of a disease, it is a thief, an intruder, a heart-breaker and it does not deserve the power that it has and we need these ‘butt kicking’ stories.

So I want to dedicate this to my Dad and also to anyone that is going through this (or any kind of cancer).

‘Daddy Stocken Kicked Cancers Butt’ My Dad said to me on the phone tonight and you certainly did that Dad, and we are so proud of you.

FUCK CANCER

 

*Update for January 2016*

I am pleased to say that Dad remains free of cancer and is doing very well and we are all so very proud of him.

Love you Dad xx

Samantha Rose (C) Copyright Jan 2016

The funny side of adrenal insufficiency

Always look on the bright side of life (or your adrenals)

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Araluen Botanical Gardens Photograph by Sam Rose

‘What?’ I hear you say, ‘You mean to tell me that there is a funny side to this horrible disease?’  Well let me tell you now, if I don’t see my own funny side; I shall be driven to curling up in a ball and chatting to my own adrenal glands to beg them for mercy – whoever ‘Mercy’ may be.

This blog is to try and find some humour out of what is happening to me and who knows, if it helps you find some humour for yourself then it won’t have been in vain.  All of the following stories are true and have been said to me but descriptions have been changed to protect the innocent and in some cases – daft.

Are you drunk Samantha?

I am not a big drinker, don’t get me wrong I used to be a party girl but now one glass of wine and I am tipsy so one glass is where I tend to stop.

However, when I get low on cortisol one of the most noticeable symptoms is slow speech and an inability to ‘problem solve’ or string a coherent sentence together.  The lower my cortisol gets, the more confused I get and the slower my speech gets.

‘Oh my god, you sound drunk, have you been drinking?’ someone asked me the other week.

Was there any point in saying no that I had not been drinking?  Probably not but I tried anyway and stumbled and fumbled around in my own mind to sort out the words I would need to in order to form that sentence.

The trouble is with low cortisol, you can’t find the right words when you need them so you have to improvise without sounding more confused than you already do.  It’s a bit like Scrabble really, only it’s ‘Scrabble inside your head’ and you rarely win the game.

‘Are you? are you drunk?’ the person repeated.

‘No I am not’ I replied, at least that is what I think I said but it may well have come out as ‘No drunk not, I am’ or some equal pile of mixed up words.  But never mind, the right words were probably there, just in the wrong order so who’s arguing? Not me that’s for sure.

Phoning the health direct line for medical advice

Now that is a laugh a minute let me tell you.  I had to call them the other week as I was very unwell after my synacthen test and could barely get off the sofa.  I do need to emphasize that it was not a 000 call to go to ED but I did need sound medical advice and quickly.  I had started off with the number to call a doctor out who then referred me to the health direct number.

I was put through to a very nice nurse who took all of my details down and decided what to do from there.

I gave her the run down and what happened and told her that I felt weak, shaky, dizzy, tummy cramps and had not pulled myself together since my synacthen test the other day and did I need to take extra steroids as I wasn’t quite sure what to do (Endo didn’t want me just stress dosing for anything which is fair enough).

‘Do you have a droopy face?’ the nurse asked on the other end (she was following protocol and going through the check list so I am in no way berating her for it as she was very nice).

I pondered for a moment, did I have a droopy face?  I don’t know, some days I wake up looking like a well bred boxer but wasn’t sure about droopy.  Grabbing my jowls and trying to tug them down, I tried to work out if I was droopy – I wasn’t.

‘No I haven’t got a droopy face’ I replied, ‘I have adrenal insufficiency and all I need to know is do I stress dose?’

‘Do you have chest pain?’ the nurse asked.

‘No, I don’t have chest pain’ I replied patiently – with my slow speech that probably made her want to ask me about my (non) droopy face again.

‘Have you been drinking?’ the nurse asked.

Resisting the urge to tell her that I had quaffed a cup of Yorkshire Tea in the morning but secretly pretended that it was brandy, I sighed ‘No, I have not been drinking’.

‘Please, can you just advise me what to do and if I need to stress dose as I feel very weak and shaky and I can’t really go far from the sofa, that is all I need to know’ I said to her.

‘Do you have left sided weakness?’ the nurse persisted as she went through the check list.

‘No, I am weak all over’ I said fretfully.

‘Do you have any pains in your head?’ she asked.

Now I had pains in many places but thought it best not to go there.

Anyway, the questions continued and I answered as best as I could and once the nurse had finished she entered the information on the computer for a few seconds while I patiently waited.

‘Right, the results say that you should consult your doctor within 12 hours’ she said firmly, ‘Can you make an appointment tomorrow morning?’

‘It is Sunday tomorrow, my GP is closed’ I sighed.  Sweet mother of god I was going to cry, except that I didn’t have the energy and I don’t produce tears as I have Sjogrens syndrome.

‘There might be an emergency doctor open near you now’ the nurse suggested.

‘I can’t drive, it’s 10pm at night and I seriously can’t get off the sofa, can you check with someone if I need to stress dose?’ I pleaded.

‘I am sorry I can’t answer that but the computer said you need to see a doctor within 12 hours so you could try the surgeries near you tomorrow, I can give you a list if you like’ the nurse suggested in a hopeful voice.

Having visions of the UK comedy program ‘Little Britain’, I could imagine her saying ‘Computer says no’.  I stopped myself from laughing and just replied that yes I would go to the doctor tomorrow and then secretly wondered if it would be safer to take a steroid now or just become all religious and pray that my adrenal glands would behave and hold out for my morning dose.

Anyway, I could not leave the sofa and that was where I remained until my husband got home and I was able to go to bed to ponder on if I had a droopy face or not and whether I should make a suggestion to Health Direct to include adrenal insufficiency on their check list.

Girls’ stuff – please skip this bit if you are an easily embarrassed male

Sometimes, just sometimes with adrenal insufficiency we ladies get issues ‘down there’ and require cream to make it better.

I walked into the chemist a couple of weeks ago to ask for some special cream and the chemist lady did not speak very good English.

‘Do you have this cream?’ I asked her and then said the name of the product.

The lady looked confused and then nodded firmly and led me to one section and after a few seconds of hunting around and running her finger alongside each shelf, she grabbed a box and triumphantly held it up.

‘Here you are, this should help’ she nodded and showed me a packet of mosquito repellent wipes.

Not knowing whether to laugh or cry, or call Health Direct for the suggested assault on my ‘lady-garden’, I spluttered ‘Are you serious?  that isn’t it, this is the cream I need’ and I repeated the name again.

‘This will fix it’ she repeated and tried to hand me the 90% DEET repellent wipes.

By now I was horrified and had even began to doubt myself and stared again at the wipes and wondered if there was some miracle ingredient in the wipes that could help ‘down below’.

‘I don’t get mosquito bites down there thank you, don’t worry, I shall try somewhere else’ I muttered. Thanking her for her help, I left her standing there clutching the wipes wondering where it had all gone wrong.

My ‘lady-garden’ had a lucky escape, I mean those bastards would have taken the skin off – can you imagine that, I mean CAN YOU IMAGINE!!!!!

I left with no cream and then ventured into the next pharmacy with high hopes that someone would be able to help me without trying to burn my vagina off with DEET.

The next pharmacy

‘Hello, can I help you?’ the assistant asked.

‘Yes, do you have this cream?’ I whispered to her discreetly, using my finest Queens English accent.

Set the scene – the chemist was busy, like packed busy – full of people type of busy and the word of the day was not discretion.  An old lady that was asking for everything to be repeated to her, suddenly found her hearing when she heard the word ‘thrush’.

‘Oh if it is for thrush and all that kind of stuff, then it is over there!’ she said loudly and then demonstrated to the aisle that virtually screamed ‘female embarrassment’ in a loud voice.

I found what I wanted and sloped off to the checkout and spotting some Glucogel lollies in a bag by the check out, I threw some into my basket with the cream and waited my turn to pay.

The assistant lifted up the box of cream and studied it briefly, I was almost tempted to ask her if she had tried it before but thought better of it.  Besides, I was starting to feel hypoglycemic and was staring at my back of Glucogel like a starving person because if I didn’t get some in my belly soon I would start sweating like Tony Abbott in a parliamentary debate.

And that brings me to my next issue – blood sugar.

Why don’t you have a banana……

I swear to god if anyone else suggests me eating a banana I am going to go into banana rage and smack them round the face with it and place the skin on their head like a yellow octopus.

Like many people with this disease, I suffer from blood sugar issues and without feeling any hunger or without any warning, I can go hypoglycemic very quickly.  I have to carry glucose tablets in my car and frequently have to eat a few before doing certain activities.

‘Why don’t you have a banana?’ someone asked me one day, ‘It’s far better for you’.

My answer to that is that Glucogel lollies shove my sugar levels up far quicker than a banana.

Besides, bananas tend to go brown and mouldy in the car and can’t be kept in the glove compartment for emergencies and if I am going to go hypo then you can keep your bananas, I want Glucogel and lots of them.

You do know that salt is bad for you right….

No, really?  I never knew that.

‘Oh my god, don’t you put a lot of salt on your food’ people have said to me.

Salt to me is like Danny and Sandy from the movie ‘Grease’ – we just ‘go’ together and at certain times of the day, salt is my best friend.

I have been in cafes where I have poured salt on my food and have had shocked looks from people which makes me want to pour even more salt and make a salt mountain on my food and stick a flag in the top of it saying that I have climbed it and survived to tell the tale.

So when you ask me if I know that salt is bad for me, please forgive me if I turn the entire salt dispenser up in the air and pour it directly in my mouth just to prove a point, although I may just vomit afterwards to spite myself.

Nose like a beagle dog

I am convinced that I have the scenting abilities of a beagle as my sense of smell is so hypersensitive.  I am quite surprised that HM Customs haven’t contacted me to sniff bags at Perth airport, no really they should consider me as I would be very good and would not be averse to wearing a dog harness to do it.

This smell sensitivity can pose a problem with certain types of food as I clutch my nose and try not to gag because someone at work is heating up their lunch.  It is very hard to smile and talk to people when you are holding your breath and trying to convince yourself that their food is not toxic and that chicken and broccoli is a nice healthy lunch and not the poison that your snout thinks it is.

I have been known to hold my breath for a considerable time to get away from people eating their food so that I don’t have to smell it while inwardly wishing that I could catch a bad cold so that my nose would block up and I wouldn’t find their curry/broccoli/lasagna quite so offensive.

We have gone to war, no really we have, I am sure of it

Whilst other people ignore the sound of a plane flying over the house or enjoy the loud sounds of a war movie, my body in fact thinks it is going to war and my adrenal glands yell out ‘we are all going to die – right now!’

‘Can you turn the TV down?’ I plead with my husband who has the volume turned down to the point he can barely hear it.  But I can hear it and those guns and bombs are gonna kill us, my adrenals say so and they don’t lie – do they?

We had a fire drill at work the other week and my head knew it wasn’t real but once again my adrenals decided to be naughty and misbehave and convince my body that we had gone to war with the Martians, which of course took me a couple of days to recover from it.

This is a huge worry for me as my body thinks it is constantly under attack and I am wondering if I should dress up as a soldier when I go out so that I am prepared for battle.

Can you imagine that happening in a shop, a fire alarm goes off and everyone is calm as you like and I am wearing army greens while yelling ‘Save yourselves and your families!’  It’s not funny really, well I guess it could be if I ended up hiding under the ‘feminine hygiene’ section of the pharmacy taking shelter next to ‘those special creams for ladies’.

You have joined the Nana club

I have turned down or cancelled so many plans because I have used up all my spoons (The Spoon Theory) and not just used up my spoons, but probably taken some out of the cupboard in a desperate bid to make it until the end of the day.

I don’t like myself for it either and mentally tell myself off for falling asleep on the sofa while my friends are out living their life and I sleep away mine.

Plans can change on the very morning that they are mean to happen.  It starts off with a battle between my mind and my sofa and goes something like this:

‘Come on Samantha, let’s get going so we can drive to the park’ I say to myself.

The sofa is winking at me in all of its leathery goodness ‘Come on sweetie, just imagine yourself lying on me with that blanket on you.  You don’t need the park, you need me and you know it’. (if sofas could talk, that is what mine would say)

I find with adrenal insufficiency that my day technically ends when my steroid dose runs out and that I seem to metabolize it very quickly so when my sofa asks me to lie down, it is because it has cruelly collaborated with my adrenal glands and that is the decision they have come up with.

Sofa Vs a trip to the park – Sofa wins the battle and I become a Nana, those adrenal glands are so manipulative.

The trials and tribulations of Pilates and adrenal insufficiency

Yes, I said that the word ‘Pilates’ and adrenal insufficiency in the same sentence.

This poses a real trial for me because I start to get low on steroids at around 6.30pm which is when Pilates starts.

Don’t get me wrong, I manage to do some of it but after about 30 mins my ‘slow button’ comes on, my speech becomes slurred, I feel dizzy and the prospect of touching my toes usually ends up with me needing to lie down on the floor while the other girls show off in their Lycra and tie their legs in knots and bows and stuff while I try and make lying down on the ground fashionable.

I usually leave the studio with shaking legs and tremors, flushed cheeks, racing heart and hair like a lavatory brush but hey, I have Lycra on and anything is possible with Lycra because you can fool yourself into thinking that you are fit purely by wearing it.

Oh I had adrenal fatigue once and I recovered…

Did you, I am so pleased for you but I do not have adrenal fatigue, my adrenals are insufficient. They are not tired, they are not taking a break from all the hard work that they are meant to do and they are not lazy.

They are just slowly reducing in function and the end result is that I am not producing enough cortisol for survival and without my oral steroids I will eventually die and it won’t be a pretty sight either – a bit like Cliff Richard in his leather pants, that isn’t pretty either but let’s not go there.

There is no supplement that substitutes oral steroid tablets and whilst I am not being ungrateful at the suggestion, I have to emphasize that I do not have adrenal fatigue, my adrenals are in a very poor state and the word ‘fatigue’ doesn’t even come into play.

I only wish that I could have a word with them and ask them nicely if they could play the game and stop messing up my life quite so much – temperamental little devils that they are.

I have never heard of that symptom before….

And finally I feel that I have to address this issue and that is where some doctors/nurses claim that because they have never heard of a particular symptom before, you cannot possibly be suffering from it.

A nurse once said to me ‘I have never heard that steroids can cause mood swings, that is not what I learned at Uni’

Looking at her as though she had grown two brains (well one brain would be nice), I decided to not argue as there would really be no point but secretly I wanted to rock back and forth and fear for the future of all adrenal/cushings patients and anyone on steroids that might be in her care.

Some of the adrenal insufficiency symptoms that I suffer from (to name but a few)

  • Salt cravings
  • Vibrating in feet
  • Painful feet – feels like someone is hitting them with a hammer while doing the River Dance on them.
  • Dizziness
  • Nausea
  • Anxiety/on edge
  • Sugar cravings

Some of these symptoms do appear to be recognized by the medical profession but trying to rationalize some of them to other people is like trying to polish a turd and where does that leave us as patients?

I think what scares me most about this attitude is that if the treatment, understanding and belief of our disease begins and ends with what doctors and nurses have learned at university/medical school then I believe that our future is not only uncertain, but quite terrifying.

Anyway, that is all from me for tonight, now if you will excuse me, I am going to take my slow self and go to bed like the Nana that I am with my trusty steroid bottle that I shall place beside the bed ready to greet me (and my droopy face) in the morning.

Samantha Rose (C) Copyright Sept 2015

Cats in ‘The Hood’ and Gordon isn’t happy

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Gordon says ‘Get off my land’ (in a Devonshire accent)

Taking the piss (literally)

As many of you know I have a 13 year old cat called Gordon whom I bought with me from the UK.  Gordon has always been an indoor cat and one would think that in the privacy and safety of his own home, should never and would never have to defend his territory.

Until now that is.

There is a large male cat in our street, I think he is owned or perhaps was once owned or maybe he is just a ‘free-range’ pain in the arse cat.

He has testicles like two tangerines in a handkerchief and a seemingly endless supply of cat piss that he enjoys spreading on my front door.  Cat piss that is so potent that within seconds of him doing it I can even smell its ‘warmth’ as it infiltrates my door and fills up my house with his scent.

It started off with him doing it the odd time a bit like feline graffiti spreading his art all over the door occasionally to be admired by other cats that may say ‘Nice piss mate’.

My cat Gordon likes to sit at his window and why wouldn’t he?  His home is his castle and he has never had to defend it against outside cats in leather jackets that threaten with menace.

In case you don’t believe that cats can talk and wear leather jackets, I am telling you that they do and they also talk very well.  Entire male cats for instance will always wear leather jackets and talk in tough accents – actually I think that all animals can talk if only we choose to listen to them.

Anyway, this rogue cat that I have named Kevin, is a right toughie.  He has a huge face, is built like a brick with attitude and he walks around our street like he owns it.

He wears a studded leather jacket and is a member of some gang – his own gang containing only him and his testicles and I think he would actually beat me up if I got too close to him.

Kevin frequently gets in to my garden and my dog Brutus has nearly pulled him off the fence by his tail on a couple of occasions as Brutus does not tolerate cats in his garden.

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Brutus – no cats in his garden!

One time Kevin the cat told Brutus to ‘Piss off’ and threatened to rip his head off and crap down his neck and also threatened Rocky that he would chop his legs off and spit-roast him with potatoes.

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Rocky on a spit-roast

So you must understand that Kevin is a hard nut but I thought somewhat naively that if we ignored him pissing up my door that he would eventually tire of such naughtiness and leave us alone and perhaps piss on someone elses door instead and oh how wrong I was.

This is my ‘hood’

My Gordon enjoys sitting at the door or the window and watching the world go by.  He is 13 years old and is an old man that sits in his rocking chair at the window with his half rimmed spectacles, doing the crossword and says ‘hello’ to anyone that goes by.  It is his pleasure, it is what he looks forward to and he does no harm to anyone as he is in his own house.

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Gordons home is his castle

Well more recently (like every night) Kevin the cat has taken to flashing his anus up at our window and calling my Gordon a ‘ginger bastard’ and then taking spraying up my door and from what Gordon tells me, he can do all of this while doing cartwheels.

‘This is MY hood you ginger bastard and I am gonna get you out of this house and take it over’ Kevin sneered at Gordon one night.  I heard it with my own ears and smelt it with my own nose and I swear to god that cat can use his rear end as a pen judging by the shapes of cat pee on my door.

Cats hate citrus – yeah right

‘I am fed up with cleaning up after this cat and the house stinking of tom cat’ I moaned to my husband at the weekend after cleaning the door yet again.

‘I don’t know what we can do to be honest’ Hubby replied in a resigned voice.  He was  scared of Kevin in his leather jacket and his big fat tom cat face and testicles like space hoppers.

But no way would I give up and I would not give in; I frantically started to check the cupboards for stuff I could put on the door that would deter this big bully cat from stinking my house out yet again.

After checking the cupboards, I found some citrus cat deterrent spray that we bought last year when Kevin first started spraying.  ‘Ah ha!’ I said triumphantly, ‘This should fix the little bastard’.

My husband shook his head despondently and took a swig of his tea and carried on watching TV.  He had given up hope, Rocky had given up hope, Brutus had given up hope and so had Gordon.  But not me, no way no never – there ain’t no Tom cat going to launch a hostile takeover of my house with his urine.

I washed the door with detergent first and then I saturated it with the citrus spray and even sprayed the trees and the foot mat outside as well.  It was bound to work, surely?  I would like to tell you that, honestly I would but I would be lying because it didn’t.

‘Citrus shitmus’ Kevin the cat hissed at Gordon through the window, ‘Reckon that will stop me?’ and then did a ‘flash of bum’ on my freshly cleaned and sprayed door and took another piss down it and not only diluted my precious citrus spray but covered it completely until the familiar ‘warm’ smell filled up my living room.  I mean good God, where was all this urine coming from, did he have two bladders or something?

The war is on!

Tonight I was watching ‘Neighbours’ on TV when quite suddenly I could smell cat piss.  ‘Mum, he has done it again!’ Gordon yelled to me from the dining room.

Jumping up out of my chair I ran to the door and opened it in time to see Kevin in his leather jacket run off down the garden while shouting ‘Catch me if you can!’ with his testicles bouncing after him like hungry puppies chasing their mum.

Well I used every single cleaning product that I have in the house plus some citrus cat repellent that SO does not work, some Glen 20 plus some other stinky chemical cleaner.

In the end I got so desperate I considered spraying my new perfume ‘Beyonce – Heat’ that I got for my birthday that makes me sneeze.  Perhaps a dose of her perfume might make this cat sneeze but knowing Kevin he will probably like that as well.

‘Just you wait! I shall find a way to stop you’ I yelled to Kevin who was smoking a cigarette from behind a tree and making ‘cut-throat’ gestures to me.

‘You reckon?’ Kevin laughed and promptly showed me his testicles in an act of defiance.

‘Mum? He won’t take over my house will he?’ Gordon asked me as I glared at Kevin through the window.

‘Over my dead body’ I snapped and reassured my elderly ginger cat as he sat by the window.

‘That can be arranged’ Kevin smirked from the other side.

A few hours later

‘I saw that cat Kevin this arvo, he was wearing a leather jacket walking round like he owned the place’ My husband said to me this evening when I told him about tonights little incident.

‘He does own the place’ I replied flatly, ‘Watch him though, he carries weapons in the form of teeth, claws, attitude and testicles’.

Plan of action

With the door clean (for now), I am planning my next strategy and went on to the Bunnings website to look at an ultrasonic cat repellent.  We probably cant try that though as it will upset Gordon.

I also found some citrus spray that is meant to deter cats which we all know that is rubbish as Kevin is hard core and will probably drink it, bathe in it and cook his mice in it.  I am now thinking of getting some lion turd from Perth zoo because that might make Kevin believe that there is a bigger and tougher cat than him in the ‘hood’.

Or I could just join him in his own game and get my husband to pee up the door just to annoy him.  But knowing Kevin he would just beat my husband up, tie him up with Gordon, Rocky and Brutus and take over my house and claim squatters rights.

Either way – the cat is in the Hood, the piss is on the door and this is war.

Samantha Rose (C) Copyright August 2015

What’s around your corner – ‘bubbles, baths and candles’


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My Shower – the place to warm my hands up!

A year ago I was living in a tatty little duplex – 3 bedroom house.  An old building in very poor repair and in dire need of decorating, renovating and modernization, however it was our home and we were lucky to have it even if we couldn’t afford to patch it up.

The house had a shower in it which is fine, but I hated that shower with a passion.  As you can see from the photo, it was old, had tiles comparable to that of ones used in the school showers at my old school and it had that horrible frosty shower glass with wire in it and the shower door was broken.

As I have an auto immune disease which affects my joints, I remember placing my hands which would always turn blue with cold; under the shower in a bid to warm them up and I would end up staying there, standing while the boiling water splashed over me until i was bright red and shrivelled.  Anyone with joint issues will vouch I am sure, just how good a soak in a hot bath is and can match a panadol any day of the week for joint and muscle pain.

What was my wish at that time? I shall tell you; the one thing I would have loved to have more than ever was to my very own bath, a bath to soak my aching joints in and warm myself up when cold and what is more; a bath with bubbles and candles to go with it.

It seemed impossible, it would mean selling the house and moving, it was in the ‘too hard basket’ and as my husband wasn’t fussed about a bath, I assumed it simply wouldn’t happen and for five years we remained in that house with that shower that I hated and grew to dread using.

A bath – a pipe dream, it would never happen and I was sure of it.

To cut a long story short, last year we found a house that we liked, we put in an offer which was accepted and our house sold within a week.

You know where I am going with this don’t you?  Yes, the new house had a bath in it and I remember the very first day I used that it, I filled it with boiling water and bubbles and I didn’t forget my candles either.

 I lay in my new bath and kept topping up the water until my skin went pink and shrivelled. Never had I been so happy, never had my joints been so happy either.

Such a little thing made a huge difference to my life and all it took was a change – albeit a large one, but one I could have made years ago had I been open and receptive and certainly not daunted by it.

ImageMy bath – complete with bubbles and candles

Darkest moments and all that….

We all go through dark moments in our lives where we literally cannot see the wood for the trees, where we cannot envisage a light at the end of the tunnel and wonder if we will ever get a lucky break.

I truly believe that at some point in our lives, we will take that journey and whilst we have no control over that, how we view it and deal with it is entirely up to us.  It is our choice because at the end of the day, we do have a choice about how we deal with things.

I was going through a very very dark and traumatic stage in my life, I had a period of not working, going through a legal case and we had to take a mortgage payment  ‘holiday’ which had two weeks left to expire.

I remember walking around the local wetlands where I live, it is a 6km walk and I was marching along with my little dog totally oblivious to my surroundings – I could have been anywhere, you could have walked past me naked and I would not have seen you, I was literally wrapped up in my own sad little world of worry.

Hearing a noise of a parrot, I glanced to my side and saw a pink and grey (Galah – pink cockatoo), actually there were several of them on the ground.  I love parrots and birds and never tire of them and here was this group of cockatoos right in front of me.

Stopping to look at them, I had one of ‘those moments’ where reality hits and does so quite hard – a moment of clarity if you like.  I was so busy worrying about what I didn’t have, what might happen and various events that had not yet happened as in losing my house, that I was totally blind to what was actually going on around me – life.

I stayed where I was for about ten minutes and took in my surroundings, the parrots flew off and I remained exactly where I was taking stock of life, of me and the choices I could make in how I dealt with things.

Grabbing my phone, I decided to take a photograph of that very moment so that I could look on it should I ever need to remember what was important in life and that is living it and not worrying about it.

To this very day, each time I look at this photograph I am taken back to that moment, to the sounds, sights and smells and I remember how far I have come in so many ways.

ImageThe photo I took of Beeliar Wetlands, Western Australia 

Things can change when you least expect it

Two weeks before we were due to contact the bank, I was offered a lifeline in the form of some temp work which gave me some much needed confidence as well as a wage to pay the mortgage.

A couple of temp jobs later, I was offered a permanent role in a job that I love and that isn’t far from where I live, the people I work with are fantastic and I really could not wish for more.

I am one of these irritating people that totally look forward to going in to work and consider myself very lucky to be in this position but a few years ago, I would never have imagined being where I am now.

Are things perfect in my life now?  No, far from it and I won’t elaborate either but one thing I will say to anyone that is going through a dark patch in their lives and that is things can and do change in the blink of an eye.

No matter how convinced you are of your future, it is not certain, it is not guaranteed and simply cannot be predicted.

Just keep an open mind and don’t shut off a path because you are nervous of taking it; because you never know what is around ‘your corner’ and if you’re lucky, it will contain baths, candles and bubbles.

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No words needed – South Beach, Fremantle, Western Australia

Samantha Rose (C) Copyright March 2014